From Gracie - September 30, 2010

"My mom is a wonderful women as all of you know. She is full of all kinds of things such as, kindness, creativeness, helpfulness, beauty, and MUCH, MUCH, more! She is the best mother a kid could have. When I'm sick, she cares for me. When I'm hurt, she helps me until I'm back on my feet. When I'm sad, she cheers me up. When I'm mad, she cools me down. When I need help, she does whatever she can to help me. And when I heard she had cancer, she sat there and cried with me. And I know whatever happens in the future, she will still care for me, still help me until I'm back on my feet, still cheer me up, and still cool me down, still help me when I need it, and still cry with me.

I love you mom!!!!! :)


P.S.

Your still the bomb! ;) lol

Note fom Pastor Sharon - September 8, 2010

Hi Trish,
So sorry to hear about the journey you are on. I think of you and yours often. Loved seeing the pics of the kids. May God walk with you and give you healing, strength and courage for all that is today. God has broad shoulders, and he will take care of you. Healing and love.
Pastor Sharon

The Blessings Are Endless - September 8, 2010

Hello all -

It has been a remarkable few days in my life, for several reasons. Through my story, and because of the wonderful blog created for me, a inspiring gentleman by the name of Andy Donnelly contacted me. Andy was diagnosed with HEH in December of 2000, when he presented with symptoms the doctors felt were gallbladder related, and therefore ordered an ultrasound. At the time of his diagnosis, there were only around 200 reported known cases of HEH world wide. So when I state that I have a rare primary liver cancer, that is truly an understatement. At that time the doctors were baffled as to how to treat his disease. An oncologist did try some chemo, however the cancer did not respond at all. He even went to a cancer center in Houston, and they pretty much wished him luck, and sent him on his way. Once he saw the liver specialist they eventually tested him for a transplant, in hopes it would cure his cancer, and he was placed on the list in May of 2003. It took about 1 1/2 to 2 years after his diagnosis for Andy to show signs of liver failure. He told me from day one, his tumors did not increase in size or number, that is very encouraging to me. I am so thankful he has come into my life. Another prayer is answered.

I not only had the wonderful opportunity to speak to Andy today about the fact that we had the same type of Liver cancer in common, I had no idea when I placed the phone call this morning it was his 7 year anniversary of his transplant. He received his transplant on this day 7 years ago, what a remarkable day to celebrate, and I was fortunate to wish him well.

To top off this news, several of my dear and beautiful friends held a benefit for me and my family on Friday September 3rd. The benefit included a meal with a free will donation, a silent auction and live auction of items donated, and yes karaoke was provided. I do not believe I have ever witnessed so much kindness and generosity at one time. They fed around 350 people. It brought so many people together in what I feel was more than a benefit for medical expenses and lost work, it was a celebration of life, and what a precious gift it is. I hope it was a promotion of what it means to donate life, and consider becoming a organ donor. I want that message to be loud and clear to everyone out there that will listen, for all of those waiting for a donor. It was beautiful, and once again I am so thankful for the kindness and generosity of so many, my cup runneth over.

I am still waiting for "the call", but I am waiting with so much peace and love in my heart that my anxiety and fear have faded. I am full of hope to help overcome those feelings. Thank you again for all of the prayers, cards, phone calls, e-mails, and gifts. I appreciate it all so much, and I vow to pay it forward. I do have one request, a dear friend of mine is having the same type of thoracic VATS procedure this Thursay, Sept 9th with Dr. Trujillo at UNMC, and if you all could send up a prayer for Scott I would appreciate it. All my love to all of you. I promise to update you all when I do get that special invitation to Omaha for my transplant.

May you all have enough,

Trish

Andy Donnelly - Shares his life experience and reaches out to Trish - September 3, 2010

Trish -

I 'had' the exact same type of cancer as you, which is incredibly rare. I had a liver transplant 7 years ago on 9.8.03 in Kansas City at KU Med Center. If you would like I can speak with her about the whole process. I would be more than happy to do so. I work for a non-profit called Gift of Life in Kansas City and manage a Mentoring program for transplant patients either pre or post transplant. Our website is www.giftdonor.org I have an article about me that was just published in the KU Med Center magazine called Be Well. I will send that to you in another email.

I am now 47 years old and have become a Dad since my transplant. I still cannot believe how this surgery has saved my life!! I am able to do anything ( within reason ) that I would like to do. I have had a brief look at the blog that someone is running to assist Trisha during this difficult time. I also have names and contacts at the University of Kansas Hospital if anyone would like to get them.

I looking forward to speaking with you and anyone who is interested about the whole process.

Andy Donnelly
Life Mentors Program Manager
Gift of Life

andyd@giftdonor.org
Learn more at giftdonor.org