Going Home: November 24, 2010

Happy Thanksgiving!!!!!


I am so overwhelmed writing this e-mail. The doctor released me to go home, and come back next Thursday for clinic. I cannot believe it. We will go have blood drawn at my clinic back home on Saturday and Wednesday, then travel back here on Thursday. The doctor said all of my labs are excellent, and I will already decrease one of my meds tomorrow. They also removed all of my staples today, that feels better for sure. How wonderful it will be to be home for the holiday, and sleep in my own bed. Although I am giving up prime rib here :(. To tell you the truth it still does not seem real. The tears of joy just keep coming. We are so thankful for the Simmonds family for so graciously taking us into their home, and treating us like royalty. They have sure earned a special place in my heart, and hope to have a visit from them in my home very soon.

So I called my mom, and told her she would have 4 more mouths to feed tomorrow, so I hope there is enough. I miss them all so much. This has been an amazing journey with countless blessings along the way. Enjoy your holiday, and stay safe and warm.

All My Love,

Trish

Scar: November 23, 2010

Hello All,


Another day, and getting stronger and stronger. The pendulum has sure swung on my weight. I gained 40 pounds in the hospital, and am now down 11 pounds from my preop weight. When they told me during the healing process I could lay in bed and my body would still burn 2,000 calories a day healing, they were not lying. I am really working on my intake of calories, and my appetite gets better each day, so bring on the Turkey and mashed potatoes. I thought I would share a picture of my incision, so I apologize if this is too much detail for some of you. It was much smaller than I thought it would be, with 21 staples holding it all together. I am so happy to have it, with a new healthy liver I thought I would show it off. Of course Peyton told me that since I was 40 now, and have a scar it was probably time to hang up the bikini anyway. Those kids, they have such a way with words. But at least they are honest, you gotta love them for that. I really don't know much more. I have been working a little and it feels good. I want all of you to have a wonderful Thanksgiving. I can't wait to hug my kids, I sure miss them. I am thankful for so many blessings in my life, and this includes all of you, my heart overflows with hope.

God Bless You All,

Trish
 

Up and Running: November 20, 2010

Hello All,


I am released. They dismissed me on Thursday afternoon. Dad was my care giver that day and did wonderful getting me all packed up and out of there. He went and got my "bag" of meds, got us checked out of the Nebraska House, which was the on campus outpatient hotel they had been staying at, and we headed to the Marriott for a nice rest. My sister Tonya was at school board meetings at that hotel, so that worked out well. Dad took me back to the hospital yesterday for my first physical therapy appointment, which went well. Larry got back into town around noon and we got moved into his cousin's until I am released to head home. Everyday I am stronger and stronger. I really feel darn good, it is amazing. Our friend Diane Kelly was coming to Omaha this weekend so she dropped the kids off today, and they will leave tomorrow afternoon. I really miss them, so I was overjoyed that worked out. We have some visitors coming by today as well, and will hang out watching the Husker game. Our accommodations are wonderful, and I am being very well taken care of. My fluid is finally decreasing, so I am looking less and less like an Ogre from Shrek. Thanks again for all of the support, it has been great. We will start our routine Monday of lab draws, PT, and clinic visits, in hopes to get me home soon.

Love,

Trish

My cup runneth over......again, and again November 18, 2010

Hello All,


I am sitting here in my chair this morning so blessed, that it beyond overwhelming. My experience has been just that, and I am so thankful for all of the support, wonderful patient care, and hope that all of you send me. It is truly a Thanksgiving holiday gift that I will never forget. I often think about the donor family and their heartache this holiday season, in hopes that I can create the words in a letter to express my true gratitude, and admiration for the gift of life. I feel a little tired today, but I am stronger as each day passes. The doctors said my body is responding so well to the new liver, and they could not be happier with the lab tests. I will get released either this afternoon, or tomorrow morning. My dad is here with me today, and I have really enjoyed the visit and help he has given me. Larry headed home last night to get some things done today, and will return tomorrow.

Larry has been an absolute pillar of strength and support through all of this, and I am so very thankful. He has been truly amazing, and I will forever be thankful. Birdeen, you should be so proud of the boy you raised. Once again thank you all for the cards, flowers, calls and e-mails. I am surrounded by so much strength from all of you, it lifts me up.

Love,

Trish

Trish's Update Wednesday PM: November 17, 2010

Today has been just a great day. Hemoglobin levels have remained stable. She is eating solid food. She walked 18 stair steps today. She has a appetite and is eating well, drinking is no problem, right now she is kind of like the Meat Loaf Song, two out of three ain't bad. She just needs to get the 3rd job accomplished, and they will release her. Trish is getting stronger everyday right before my eyes. I want to thank all of you for your support, your thoughts and prayers, all of the flowers and cards. Her room is the envy of the hospital, it smells like a flower shop. Thank you so much for those of you taking care of our kids, we could not have gotten thru all of this without you. I am heading home tonight for a couple of days to sew up loose ends. I hope to come back on Friday am and take her to my cousins house where we will reside for a few weeks.


Lar

Trish's Update as of Tuesday PM: November 16, 2010

Today has gone much better, we keep seeing more and more improvement. Her hemoglobin has remained steadily at 9.8, without any help. She has been cleared to eat anything she wants, which has made her day. She was starting to get a little hungry, don't know why, she at a meal a week ago. Her vital signs are great, liver is performing well, and her spirits have been lifted. I don't want to say we are out of the woods, but I think we are close. Doctor says when she can eat, drink and _ _ _ _ , she can be released from the hospital.

Lar

Trish's Update - Monday Evening: November 15, 2010

Well our day has gotten better. Trish started the day with hemoglobin count at 10.4 after receiving 2 units of blood thru the night. At noon she improved to 11.1 and the lab at 6pm was 10.4. This is a big improvement over the last couple of days. Hopefully we are done needing blood. The doctor today said we will continue doing what we are doing, surgery does not seem necessary. Trish felt great today, she took a shower, brushed her teeth. She started a clear fluid diet today, which has made her feel much better. She has gained 30 lbs due to water retention, she's swollen like a tick on a dog in July. Doctor says it will come off real quick. Thats all for now.


Lar

Note: From Brenden - November 15, 2010

Dear Trish,


Hello this is Brenden. I just wanted to let you know that I'm happy that you're feeling better. I bet that you were pretty excited when you got the call from the hospital. I might get to see you on Tuesday when I come to get my Crohn's disease treatment. Tell Gracie I said hi please. Maeli says hi too. I hope you keep doing well in the hospital.

Your friend,

Brenden

P.S. I hope you get to feeling well so you can make me some more good lunch/dinner! ha, ha :)

Sunday Afternoon - November 14, 2010

We have moved from icu now to a regular room today. Her hemoglobin worked its way from 8.7 to 9.3 on its own in a half of day, requiring no additional blood. She was feeling pretty good today, she had quite a few visitors and was able to visit with each and every one of them. They pulled her ng tube as well as her catheter. However her hemoglobin has dropped to 7.3 this evening. This is puzzling. She is going to receive more blood this evening and try to get it back up to 10. Unfortunately we keep having these setbacks along the way.


Lar

Sunday Morning Update: November 14, 2010

Well we made it through the night without a hitch. They drew blood at midnight and the result was a 9.3 hemoglobin, and drew it again at 5am and that result was 8.7 hemoglobin. So I guess they continue to monitor, and they have blood on standby in case she drops to 8. I am not sure what this all means, one thing is for sure is that she did not bleed as much last night as the night before. She feels a lot better this morning, she talked with her mom and sister on the phone. I wish, I knew more, and I will give you more info once we speak with a doctor. Keep up the prayers.


Lar

Update: November 13, 2010

Trish's hemoglobin is up to 10 which is a normal level. They will continue to monitor those levels all night. If we can have that number come morning it would then appear that the bleeding has stopped. Her blood pressure has remained stable all day. She has been in and out of sleep all day. This seems to have really worn her out today. I won't know much more until morning, I will update when we hear from the lab in the morning.


Lar

Update on Trish - November 13, 2010

Last night gave us a small setback. Trish woke up this morning to go to the restroom and felt nauseated. Her NG tube was showing signs of dark red blood. Her hemoglobin count was down to 6.8 and her blood pressure was down. This was indicating she is bleeding somewhere. They took her back to icu and scoped her. The scoped indicated that the blood was not coming from her liver, or where the roux was connected to the liver. It was not coming from her stomach, they looked around as far as the scope could reach, they could not see where the blood came from. The scope also indicated there was no fresh blood being released. What they learned is the bleeding has stopped, and has to be coming from where the roux was connected to the intestine, or where they removed the pancreatic tissue from the lower intestine. They gave her four units of blood, she is stable and they are going to monitor her hemoglobin and blood pressure. Her liver functions are fine. We expect to remain in icu for the remainder of the weekend. Right now she is doing fine.

Note: ' Your New Friend' - Amy Bjork - November 12, 2010

Hi Trish,


Bless your heart! (And your new liver, too!)

You don't know me - my sister Andrea works with your friend Kelli and that is how I heard about you. I was having a less-than-perfect day and called my sister in hopes of receiving a good giggle, or some other sort of pick-me-up (she's very good at that). She said, "Well, I've got a really positive story for you if you want to hear it...". I replied, "PLEASE!" and she began telling me your beautiful story. I have spent the better part of the afternoon reading your blog (through teary eyes) and just wanted to thank you for sharing your journey with us. Your positive and winning attitude, give us all hope and is such an amazing inspiration. Our world is very lucky to have people like you in it!

I'm so glad to see that you are doing well Trish and wish you a swift, painless and complete recovery! I just wanted to let you know that you have a new friend sending you love, prayers and happy thoughts from Seattle, WA.  :)
Much love,

Amy Bjork

Good Health... November 12, 2010

Good morning, afternoon, or evening everybody.

Just a quick update to brighten your days! By the way this is Gracie. Right now we have Jan Ferguson, Tonya Smith, Larry Grote, Scott Giebler, Tom Ferguson, and of course (best os all) me, Gracie J. Grote. Oh! And my mom, Trish. Anyway, she is doing great. She still has N/G (Nasil Gogastrice tube) in, but they might get it out tomorrow or the next day. They are accepting visitors so you can come and visit anytime. And the mailing address, I think you already got yesterday, but if not, just e-mail me back and I'll give it to you. And any questions, I'll try my best to answer them. And you can call any time and talk to me, my dad, or even my mom. Feel free. I hope you are all doing well! For more updates, visit my facebook page at www.facebook.com and when you sign in type Gracie Grote in the search box and you should find me. I hope to see you soon! Have a absolutely splendid day!
-Gracie


Note: From Sheila Stern - November 11, 2010

Awesome!!! I wish you a quick recovery and that this Thanksgiving Day will be an extra special day for you and your family.
Best wishes and prayers sent your way!

Sheila

Note: From an old friend...Tiffany Stauffer Osborn - November 11, 2010

Hi, I am a friend of Trish's, I have not seen her since after hs. I have never known what had become of her, but kept her friendship and laughter inside me for years. Through facebook I have connected with other friends of ours, and found out from Lori Eby Blotskie of her condition. I am so excited that she is still riding, she always loved to ride, and the last time I was on a horse it was with her on a horse named J.R.

It is strange to be excited to hear news of a long lost friend and somber that the news is full of tribulation. To see Trish's family, husband, her kids for the first time...its a blessing. And to see her surrounded by such hope and support is beautiful and fills me with faith.

So Trish, check it out....You are going to be just fine, cause its gonna take some time for us to get caught up. You are in my prayers, Trust in Lord and lean not on your own understanding....

My Best,
Tiffany Stauffer Osborn

Note: From Sharri Miner - November 11,2010

Trish,


Wow—words can’t explain the joy I am feeling for You, Larry, and the kids right now! It’s another miracle-one you deserve! I can’t wait to see you!

Prayers and hugs,

Sharri

The Gift of Life is Amazing!! - November 11, 2010

Early morning greetings,


It is 6:35 am and I am sitting up watching and visiting, what a glorious day. The most uncomfortable part of the procedure so far was waking up with the breathing tube and being very alert for another 5 1/2 hours, it was terribly uncomfortable. I finally went of the ventilator at 2;30 pm, giving much relief. My first time sitting up in the chair occurred 14 hrs after surgery, its just amazing. My care has been top notch, I have had very little pain, only 3mg of pain meds. It has been wonderful having family and freinds around to help support me, Gracie is a great little jr. nurse. Peyton is excited to come see his mother, I miss him so much.

My heart sinks everytime I think of the victim and their family that suffered a loss to give me the gift of life.

I want my family to know I wont be home to host xmas, seems like a weak excuse but I am gonna have to pass on hosting this year. The plan today is to start walking and by the middle of the day get released from intensive care. I just want to thank all of you for your emails, texts, concerining my surgery, but most of all, all of your thoughts and prayers. A special thanks to Kayla for covering my jewelry shows, and the Kizer family for taking in Peyton and a dog. I have more hope than fear now.

Love to you all,

Trish

Sitting up in chair 14 hours post-op... I feel great!!

From Gracie - November 10, 2010

Hello all,

This is Gracie Grote (the daughter of Trish Grote) and I thought you would just like to hear the story...

Well, first of all, my mom was headed to a jewlery party in Elm Creek. She had just left the garage when she drove back up and came in the house with this astonished and surprised look on her face. And I knew. I said 'UNMC??!!!!' and she nodded franticly. So I jumped on the 4-wheeler and floored it down to the cornfield to get Peyton (my brother) because he was setting up a trail camera. I was hauling butt yelling 'Peyton! Peyton! PEYTON! Mom just got called in! Let's go!!!!!!!!'. he said 'WHAT?! Oh my gosh! Move over and let me drive!' and when we got to the house mom said to pack a bag AND QUICK! But Peyton didn't want to come quite yet because he didn't want to see my mom in that condition and he said he had to take care of the animals and stuff so he is staying with some neighbors. Me, Mom, Grandma Jan, and Aunt Tonya got in the car, dropped off jewlery of at a woman's house, and we high tailed it to Omaha arriving at 8:45pm while Kelli (my moms UNMC friend) arrived at 8:00pm already giving us crap about being forty-five minutes after her. (wink wink) I guess she is just fast. So we got all of the tesing and stuff over with and went to a room where there was more testing and waiting for a positive sight of the liver. And when that happened, it was 11:15pm to 11:30pm when they got done doing the biopsy to the liver, they came in and said quote: "It's a go." So of course we had to say our good-byes and let her go, which was SOOOOOOOOOOO HARD, as you might know. So we got progress phone calls every hour, hour and a half and they were always good reports. And then the australian docter came and said she did great, and found some strange things in the liver but got it out. So as of right now mom is in the ICU (Intensive Care Unit) and we are waiting to see her. Thenk you for all of your wonderful thoughts and prayers. We will keep praying, and hope everything else goes well.

As of 15 hours ago the journey begins.

Gracie

6:00 am - November 10, 2010

This just in! After a phone call confirming she was on the table at 1:30am, and some progress phone calls, Trish's surgeon just met with us at 6 am to tell us the surgery went well. We should be able to see her in about an hour. Her surgeon said that they looked around while they were in and did biopsy a couple of lymph nodes and they were normal. He did say that they found some ectopic (not in the normal place) pancreas tissue on her bowel so he took that out. He said that this was rare, imagine that! Trish continues to keep everyone on their toes!

She has been incredibly strong through this thus far and we expect no less.

Kelli and Gracie

Ready and Waiting... November 9, 2010

It's GO Time!!!! - November 9, 2010

At 4:47 pm, Tuesday, Nov 9th, Trish received "the call". After some frantic packing, Jan, Tonya, Gracie and Trish arrived at UNMC at 8:45 pm. Kelli drove in from Sioux City (without a speeding ticket) and arrived at 8pm. Larry arrived at 9:30pm from McPherson, Kansas. Trish was admitted to her room and the testing began. All the nurses and staff are still trying to figure out how she ended up here! After a couple of excruciating attempts at an arterial line, she is relatively comfortable. The protocol states that once the liver is "in the house", it still has to be biopsied to make sure it is the perfect match. Basically UNMC wants to verify what shape the liver is in since it is coming from another hospital. We don't know if it is coming via chopper or fixed wing, but we now have verification at 12:10 am that the liver is here!

12:15 pm, it is OFFICIAL! With hugs and kisses we sent her off. She is in the best of hands and that gives us great comfort. Keep her in your prayers and we will update you as we know more.

'The Call'....finally came... November 9, 2010

Trish got the call this afternoon that there is a donor liver that is a match for her. She is on her way there now.  There are still some final factors before everything is a 'for sure' go. More details as soon as we have them.

Let's all send our prayers Trish's way.

Whitney

Gracie and I riding on Calamus Lake..

We do have beaches in Nebraska.

Quick Update - November 5, 2010

Hey All,


I just wanted to drop a quick note to fill you in on all of the tests they ran last week. All of the labs, other than my sed rate and C-reactive protein, were once again normal. None of the additional testing for the fungus came up positive. The increased sed rate and C-reactive protein just show that there is inflammation some where in my body, my liver maybe? The infectious disease doctors were wanting to do a bronchoscopy to get another sample of my lung, however Dr. Sorrell and the liver surgeon disagree, and they will leave me alone.

I had hoped to not mention this for years to come, but we will have to go back to court for Tracy on the 29th of November. Her murderer would like a hearing so the judge can explain to him why the appeal was denied, and of course that was granted. He will be on speaker phone, asking his questions, and the judge will explain to him that when you take a young woman and beat her to death, you don't deserve a new trial. Those may be my words, so if they let me speak look out. Either way I will be there to support everyone involved.

Gracie, Peyton and I moved cattle last saturday for some friends, (Peyton was on a 4-wheeler, Larry was in a pick-up) then we went up to Calamus lake with some good friends and rode our horses on the beach. When I get the pictures back I will post them. It was a glorious day, for 2 reasons, we got to ride, and we beat Missouri in football. I cherish those days when Gracie and I get to ride together, it is wonderful. I guess I will have to take up hunting to hang out with Peyton, horses aren't his thing. Thank you all for your continued support, prayers, cards and gifts . All of you help me to be a stronger person. You lift my spirits up so high.

I am so blessed,

Trish

Quick Update - November 5, 2010

Hey All,


I just wanted to drop a quick note to fill you in on all of the tests they ran last week. All of the labs, other than my sed rate and C-reactive protein, were once again normal. None of the additional testing for the fungus came up positive. The increased sed rate and C-reactive protein just show that there is inflammation some where in my body, my liver maybe? The infectious disease doctors were wanting to do a bronchoscopy to get another sample of my lung, however Dr. Sorrell and the liver surgeon disagree, and they will leave me alone.

I had hoped to not mention this for years to come, but we will have to go back to court for Tracy on the 29th of  November. Her murderer would like a hearing so the judge can explain to him why the appeal was denied, and of course that was granted. He will be on speaker phone, asking his questions, and the judge will explain to him that when you take a young woman and beat her to death, you don't deserve a new trial. Those may be my words, so if they let me speak look out. Either way I will be there to support everyone involved.

Gracie, Peyton and I moved cattle last saturday for some friends, (Peyton was on a 4-wheeler, Larry was in a pick-up) then we went up to Calamus lake with some good friends and rode our horses on the beach. When I get the pictures back I will post them. It was a glorious day, for 2 reasons, we got to ride, and we beat Missouri in football. I cherish those days when Gracie and I get to ride together, it is wonderful. I guess I will have to take up hunting to hang out with Peyton, horses aren't his thing. Thank you all for your continued support, prayers, cards and gifts . All of you help me to be a stronger person. You lift my spirits up so high.
I am so blessed,

Trish