Me again,
Well I was very fortunate to be home for Christmas, and I am going to hang onto that blessing............as I head out for Omaha tomorrow morning at 5:30 am for another liver biopsy. My liver functions are higher than they were when I was in the hospital, and my bilirubin is creeping up again as well. Not the news I wanted by any means, but I will keep my chin up and get back down to the Med Center for what I need to have done. This process is frustrating, but I realize it is all a part of the roller coaster ride. If the biopsy once again shows moderate rejection, I will be readmitted to the hospital for more steroid treatments. If it does not show rejection, I will have to stay in Omaha to have my labs drawn for several days, or a week, or who knows. The labs from Kearney, especially my Prograf (anti-rejection med) levels are taking too long to get back, and the surgeon is quite concerned. The holiday may have played a part in this as well. I knew I didn't want to call the transplant coordinator today, but with some encouragement I did, I just wish the news would of been better.
I am so very thankful for a beautiful Christmas holiday with my family, that was priceless. The food was wonderful, and I got to see one of my oldest friends Jill who now lives in Texas. I really feel good, and it is hard to believe my numbers are so out of whack. I was tired yesterday, but I had wonderful care from everyone here. Thank you all for all of the beautiful Christmas cards, e-mails, and phone calls. The support is endless, and it lifts me up to face the next challenge.
All my love,
Trish
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